CHD SUPPORT
Support and information for families of children
and adults with heart defects.
An information and support group for parents of children with Congenital Heart Defects is being offered to members of the community. This support group is for anyone affected by CHD.
With 1 out of every 100 births, there is a large population of CHD families. When you hear “your child has congenital heart defects”, it changes your life and is an extremely trying time. The presence of a congenital heart defect often results in an emotional strain on families at a very vulnerable time.
CHD is a family problem and sharing with other’s can and does help. You are not alone. This is why it is so very important to connect families with resources for information and support! It may be helpful to talk to another parent who has experienced a similar situation and understands how you feel. Education and support is an important part of successful coping.
CHD Support is a support group that provides families with an opportunity to share their emotions and their expertise with other parents. We have as a continuous goal, to provide support, share experiences and supply information to adults and families of children affected by CHD.
The CHD Support group strives to facilitate and enhance communication and mutual understanding of roles and relationships between families and staff. It sponsors events and projects to maintain and improve the quality of care provided to patients and families. Through our parent-to-parent approach, we provide support from those who have the experience and have "been there" to other families. We can also put you in touch with local contacts within your region. Local contacts are parents of CHD children or adults affected by CHD.
In addition, educational speakers and health care providers participate in meetings to educate the families and provide accurate and up to date information to help in understanding congenital heart disease.
We do not recommend or endorse specific treatments. Presentations
are intended to provide parents with information, with which they should consult
their trusted and experienced professionals to establish the best course of
treatment for their own child. |
